For the last several years, I’ve been struggling with a major health issue. My diagnoses include a range of alphabet soup, but the primary issue is a “central sensitization syndrome” called Myalgic Encephalomyelitis (ME/CFS).
This affects my central nervous system and energy production, and the primary symptoms are:
- debilitating fatigue (depletion) that does not ease with rest/sleep
- post-exertional malaise (PEM), which is a fancy way of saying when I exert too much (physical, mental, or emotional) I “crash” (see more below)
- cognitive challenges (severe brain fog, memory issues, slow thinking/processing, inability to concentrate)
- chronic pain (random and severe)
- misc other issues – too much to list – pesky things like random blurry vision, insane itchiness, etc.
So what is a crash? It’s like having the flu. Literally. All my symptoms get worse, and I’m completely unable to think, to move, to function. When I am crashed, I can’t leave the house, I can’t get off the couch, I can’t prepare food. I can’t so much as think my way clear to make a shopping list.
One of the hardest parts is trying to sort out how much I can do without triggering a crash. It is a moving target and super hard to predict. The effort to remain within my safe zone is called “pacing.”
So what causes ME/CFS? It’s unclear, but it is thought that it can be triggered by trauma, chronic intense stress, or a viral infection (like COVID – you may have heard this referred to as Long COVID”).
The future is unclear, but it is probable I will always have to deal with this, though it may get better or worse. Some people are bedridden. Some people go into remission. It’s estimated that better pacing can help prevent crashes from getting more severe over time.
As a person who has always been heavily involved in the community, working, volunteering, and using my brain to make a living and enjoy life, it’s been quite a challenge to find and live within my safe zone while actively trying to expand that safe zone as much as possible. It feels like an unsolvable puzzle.
Another key feature of ME/CFS is that it can be an “invisible” illness. That means that many people would never guess what’s going on by looking at me.
If I’m in public, it typically means it’s a good day (i do have good days!) and I’m not currently in a crash. I can fake being well for short bursts – when I am out, I’m going to smile, laugh, and talk to people. I may force myself to walk “normal” and pretend I have no pain because hell yes, I’m going to suck it up in public as much as possible. It’s called “masking.”
Of course, masking takes a ton of energy, which increases the fall-out.
Things have progressed to the point where I’m having to take extra measures in order to protect my energy so I can keep up with the basics and to maintain a semblance of quality of life.
I’m sure you’ve all seen Jeff doing the grocery shopping, getting the mail…doing all the things, really. He is an amazing support system, and I’m so, so thankful for him. I am also so fortunate that I have (had) a job with outstanding health benefits, including long-term disability insurance.
But quality of life, for me, includes getting out into the community when possible. I’m starting to use mobility aids. I have a handicap parking pass, so I can use my energy IN a store instead of crossing the parking lot. I now have an electric wheelchair I can use in stores, or to “walk” down the bike path with the dogs, or to do a few errands in town. I can even get out for fresh air when I’m a bit crashy! I’m looking at getting an electric scooter to expand this ability, as I avoid driving as much as possible.
Lastly: I’ve found my way to an AMAZING medical clinic that specializes in this sort of issue, and I have excellent support. Their clinic is extremely modern and open-minded and puts on multiple sessions a week (by video) on both traditional and more unusual methods of treatments.
Their speakers range from Occupational Therapists to Naturopaths, and sessions have included yoga, meditation, nutrition, supplements, and pretty much anything else one could imagine. I’ve tried almost all of it over the last couple of years (Who? Me? Type A?); some has helped, and some has not. No miracles yet. 😅
Automattic
https://shorturl.fm/r45Eu
https://shorturl.fm/bSc5M
Для успешной торговли используются бесплатные сигналы форекс бинариум, которые значительно повышают шансы на прибыль.
Благодаря сигналам снижается уровень неопределенности и увеличивается шансы на успешные сделки.
—
Технологические решения позволяют получать своевременные и надежные рекомендации для трейдинга.
So my freind told me about this site yestarday and i checked out 20bet Onlinecasino and honestly didnt expect much but its actually pretty decent, loads fast, interface looks modern, accross the board seems like a solid option from what ive seen so far
So my friend told me about aviator game download like two weeks ago and i was skeptical at first right but then i actually looked into it and the whole mechanics thing is actually intresting, like theres strategy involved not just mindless clicking, anyway been using it since then its pretty solid
Если хочется узнать, чем именно Курентзис отличается от большинства современных дирижеров, рекомендую эту подборку материалов: https://lobnya.myqip.ru/?1-3-0-00000383-000-0-0-1777556751
Вывод из запоя в Казани на дому и в клинике: врач-нарколог, капельница, детоксикация, лечение алкоголизма, кодирование, реабилитация — круглосуточная помощь анонимно
Получить больше информации – вывод из запоя на дому недорого в казани
Вы получаете не просто разовую процедуру, а комплекс медицинской помощи. Врач нарколога может объяснить родственникам, как говорить с зависимым, что делать после капельницы, какие препараты принимать, когда необходимо лечение в клинике и почему кодирование алкоголизма или реабилитация часто становятся следующим этапом. Такой подход помогает не только вывести пациента из запоя, но и начать полноценное восстановление.
Получить дополнительную информацию – вывод из запоя в казани
From a technical standpoint, 1Ace loads incredibly fast even on slower connections, the mobile interface is clean and responsive, and the overall UI dosen’t have that cluttered feeling you get with some competitors. The navigation is intuitive and pages render smoothly across devices. 1 ace login
Way better than what I was using before, honestly it’s not even close. The whole experiance here is less clunky and the payment options are way more flexible than my previous platform. allbritish
Tried it but honestly seems ok so far but gonna give it more time before making any real judgements about wether its actually worth it. looks decent at least. ultra panda login
ФК «Ростов» редко называют главным фаворитом сезона, однако команда из года в год находит способ удивлять болельщиков и экспертов. Почему клуб остаётся одним из самых самобытных в российском футболе и чем привлекает своих поклонников — в новом материале: https://tenchat.ru/media/5347110-fk-rostov–komanda-kotoraya-umeyet-lomat-ozhidaniya
Si vas quieres encontrar donde reservar jets de agua en este destino, hay varias alternativas interesantes tanto en el sur de la isla como en distintas zonas como esta popular area y este animado lugar. Podras localizar alquiler moto de agua Tenerife sur con costos convenientes y excursiones como jet bike safari o aqua safari que mezclan energia y vistas maravillosos. Para opciones mas detalladas, tambien existe la chance de rentar motos de agua en Tenerife Los Gigantes o aprovechar deportes acuaticos en esta zona. Para mas detalles sobre disponibilidad y costos, te aconsejo visitar cheap jet ski tenerife .
Del mismo modo, Tenerife presenta recursos para todo tipo de niveles, desde los que comienzan hasta profesionales, con negocios como Jet Hub Tenerife y Adrenalina Jet que llevan a cabo excursiones en jetskis y jet ski safaris en areas como Costa Adeje. Si quieres una vivencia enriquecedora y sin riesgos, evalua las excursiones motos de agua Tenerife sur o en otros lugares, y no descuides que asegurar con antelacion siempre ayuda, en especial en los periodos de mayor afluencia. Por si lo deseas, el telefono +34 612 345 678 es util para dudas rapidas.
Если вы ищете надежный автосервис для вашей Тойота в Москве, вам повезло. Специалисты готовы осуществлять ремонт и обслуживание ваших автомобилей.
Если вам нужен качественный и надежный автосервис Тойота в Москве, мы предлагаем широкий спектр услуг для вашего автомобиля.
Для Тойота необходим высокий уровень квалификации. Мастера сервиса постоянно повышают свою квалификацию для качественного обслуживания.
Техническое оснащение сервиса соответствует самым высоким стандартам. Наличие современного оборудования существенно упрощает процесс диагностики.
Наш автосервис обеспечивает надежность и долговечность вашего автомобиля. Наши клиенты всегда остаются довольны результатом работ.
Reading this slowly and letting each paragraph land before moving on, and a stop at thisdomainisabdu earned the same patient approach, content that rewards slow reading rather than speed is content with real density and the writers here are clearly producing work that benefits from the careful eye rather than the rushed scan.
Наркологическая помощь позволяет безопасно начать выведение токсинов, снизить интоксикации, восстановить водно-солевой баланс и подобрать дальнейшее лечение алкогольной зависимости. Нарколог проводит анализ состояния пациента, уточняет стаж употребления спиртного, причины запоя, наличие хронического заболевания, психических расстройств, противопоказаний и других ограничений. После диагностики врач выбирает схему: амбулаторно на дому, в стационаре клиники или с госпитализацией.
Получить дополнительные сведения – вывод из запоя капельница на дому сочи
Beşiktaş Acil Su Kaçağı Tespiti Fatura çok uygundu, düşündüğümden çok daha ekonomik. https://newarkairlineshow.com
Came in skeptical and left mostly convinced, that is the highest praise I can offer, and a look at tasseltract pushed me further in the same direction, content that survives a critical first read is rare and worth recognising because most blog posts crumble under any real scrutiny these days when you actually pay attention closely.
Now feeling mildly impressed in a way I do not quite remember feeling about a blog in a while, and a stop at stridertorch extended that mild impression, content that produces specific positive emotional responses rather than just neutral information transfer is content with extra dimensions and this site has those extra dimensions clearly.
Just want to record that this site is entering my regular reading list, and a look at siskatrance confirmed it deserves the spot, my regular reading list is short and well curated and adding to it requires meeting a fairly high quality bar that this site has clearly cleared without much effort apparently.
Found this through a search that was generic enough I did not expect quality results, and a look at tweedvolume continued the surprisingly good experience, search engines occasionally still surface excellent independent content if you scroll past the obvious paid and high authority results which is reassuring to remember sometimes.
https://shorturl.fm/IlFD0
Took longer than expected to finish because I kept stopping to think, and a stop at vesseltame did the same to me, content that provokes thought rather than just delivering information is in a different category and the team here is clearly working at that higher level rather than just cranking out posts.
A small thing but the line spacing and font choices made reading this physically pleasant, and a look at singersorbet maintained the same careful design, technical choices about typography are part of what makes online reading actually comfortable and this site has clearly invested in the design layer alongside the content layer carefully.
Reading this brought back an idea I had set aside months ago, and a stop at swansignal added more substance to that idea, content that revives dormant projects in my own thinking is content with serious creative value and this site is contributing to my own work in ways I had not expected when first clicking through.
Now adding the homepage to my regular check rotation rather than waiting for individual links to find me, and a stop at waferturtle confirmed the rotation upgrade, the move from passive discovery to active checking is a vote of confidence in a sites ongoing quality and this site has earned that active engagement clearly.
Most blog writing on this subject reaches for the same handful of arguments and this post avoided them, and a look at starlitvixen continued the original treatment, content that finds its own path through territory other writers have flattened is content with real authorial energy and this site has plenty of that distinctive energy.